California
officials are considering changing the state's HIV
reporting system from its current codes-based system
to one of simply recording the names of those
testing positive for HIV antibodies because the
current system is a "bureaucratic morass," the
Los Angeles Times reports. California began
reporting HIV cases to the federal government only three
years ago and chose to used a codes-based system to
protect the privacy of the state's HIV-positive
people. The codes use a complex combination of a
patient's birth date, gender, and some letters
from their last name.
But health
officials say "countless" cases are being lost
in the system because of incorrect or incomplete codes
or because doctors and labs fail to keep key patient
data. Because of these problems, the state is unable
to accurately track infection trends and allocate state and
federal resources to areas with rising HIV levels,
according to state AIDS experts. They also say the
codes-based system makes it difficult to follow up
with patients, to notify the sex partners of those
who've tested positive for HIV infection so
that they can be screened for the disease, and to
eliminate duplicate case reports.
State officials
also are considering switching to names-based HIV case
reporting because the federal Centers for Disease Control
and Prevention does not consider codes-based reporting
to be as reliable as names-based systems and could
withhold some HIV prevention and treatment funds from
the state because it is unable to correctly gauge the impact
of the disease among Californians. State officials say
California could lose as much as $50 million in CDC
funds by sticking to the codes-based system.