Different people
react to HIV-positive diagnoses in different ways. Some
become depressed, some try to escape. Bryan Levinson
responded by starting his own HIV-positive social
network.
"Maybe my way of
denial was to be in total openness about it," he
muses, a few busy years later. "I've been totally open from
day one."
Far from being
devastated by HIV, Levinson grew with it. After
"coasting along" in his late 20s, Levinson said the
experience of getting HIV at 30 made him start taking
better care of himself, and more fully appreciate
life.
"I find that
happens with positive guys," Levinson said. "They tend
to become more settled, because they've had the shit
knocked out of them. I tell people God bitch-slapped me:
'Wake up, bitch!'"
Original SIN
A welcome
by-product of Levinson's "bitch-slapping" is Strength
in Numbers (SIN), the fast-growing social network of
HIV-positive men and friends Levinson founded.
Levinson started
SIN with a potluck dinner at a private home in the
Hollywood hills in 2003. He initially conceived of the group
as a dating vehicle for HIV-positive men. It was three
years since the entertainment executive had become
positive himself, and he felt he'd be more comfortable
going out with other HIV-positive men.
"I think that
there's more acceptance," Levinson said. "We're not
going to have that big issue weighting between us."
Dinner led to
weekly breakfasts in West Hollywood. Soon the group had
grown from dozens to hundreds. A Web site was created.
Meanwhile, the original dating club had morphed into a
social organization.
"Here I was
trying to put something together because I knew guys
really needed a venue for dating, because being positive
brings so much [emotional] risk with it, but when I
saw how the guys were interacting, it became more
social very quickly," Levinson said.
SIN provided an
ideal environment for HIV-positive gay men to share their
experiences with one another. Men who'd been infected for 20
years offered guidance to younger men like Levinson,
who'd only recently started dealing with HIV -- and
vice versa.
"Newer guys have
a whole new take on living with HIV," Levinson said.
"I think they don't come with that same emotional baggage.
If you've been living with HIV for 20 years, you've
probably lost the vast majority of your friends, and
that takes a huge emotional toll. Guys like myself
don't have that same emotional baggage. I think we're more
optimistic about what the future can bring."
At the same time,
HIV "veterans" know the ins and outs of long-term
treatment, and they've navigated some of the illness's
trickier emotional curves. "When [newly positive guys]
post these questions -- 'I have KS (Kaposi's sarcoma)!
I'm freaking out!' -- Then the guys who have had it
since the '80s can walk them through it: 'I've had it.
You're gonna be OK,'" Levinson says.
SIN world
Since going
online, SIN has expanded across the U.S., Canada and the
U.K. SIN groups in larger cities hold dinner parties
like the ones Levinson continues to host in Los
Angeles. "I really want guys to be able to meet each
other in person," Levinson says. "When you actually get
to see people in the flesh, that's really where you're going
to make a bond."
Levinson doesn't
see an inherent conflict between the Internet and the
offline world. Over time, he predicts, the Web will serve
more and more as a means of bringing people together
physically.
One major benefit
the Internet already provides is that it connects
isolated men in smaller towns. "First they're gay in a rural
area, and now they're positive," Levinson empathizes.
"Here's this great vehicle for them to be able to
reach out."
An important part
of Levinson's mission is to reach out to such men, who
lack social outlets. He sees that group growing,
unfortunately, as public resources contract. "A lot of
times the first thing they cut in AIDS services is any
kind of social event; now they have to put all their
resources into pure therapy," Levinson says. "In a lot of
areas, they're seeing all of their HIV services cut."
SIN doesn't
require much funding. Levinson is not actively seeking
grants -- and especially not the strings that are
typically attached to them. Mostly, he's focusing on
private and online fundraising to keep the Web site
running.
SIN also helps
more urban men find one another, especially when they
travel. AIDS is still stigmatized; HIV-positive men risk
rejection whenever they meet new people in new cities.
With SIN, they can hook up with people they or their
network buddies have pre-screened.
"I think that's a
huge relief," Levinson says. "Because when you go to a
new city, and you're positive, you put up these walls --
'I've gotta start watching myself.' It comes in subtle but
profound ways. You have to monitor yourself like
you're back in the closet, and it gets exhausting
after a while."
Local SIN
chapters enjoy substantial autonomy, by design. "We try to
let each group be as independent as they can be, because I
really think local ownership is the key," Levinson
says.
SIN's popularity
in the U.S. suggests the group could become a hit
worldwide. Levinson says he's brushing up on his college
French and Spanish: "Once we really establish
ourselves in the U.S. and Canada, I think more people
will start hearing about us around the world, and we
can start helping people around the world."
Wisdom of SIN
Levinson has
learned a lot about HIV life through SIN. For one thing,
he's found that many HIV-negative men value the community
HIV-positive men share. Whether they're the partners
of HIV-positive men or just friends, HIV-negative men
are drawn to SIN, and to the social bonds they find
there.
At the same time,
Levinson has discovered that some HIV-negative gay men
are more skittish about AIDS than even straight folks. "I
think gay men tend to be a little more uptight about
the issue, because they're afraid of catching it,"
Levinson says. "I think there's also this sense of
fear and denial. So when you come to them and you're really
open about being positive, that puts the issue right
in their face. If they push away anybody in their life
who's positive, they don't have to deal with the
issue."
HIV-negative men
would do well to overcome their fear and recognize the
allies they have in HIV-positive men, Levinson suggests. SIN
members tend to be very protective of their
HIV-negative friends and lovers, committed to
preventing any more infections, Levinson says. In fact, many
HIV-positive men prefer not to date HIV-negative men,
Levinson has found -- sometimes to their suitors'
consternation: "I'm supposed to be rejecting you, not
the other way around!" Levinson hears them protest.
Given the
complexities of HIV life, Levinson's greatest surprise may
be just how many HIV-negative men have fallen for him
since he was diagnosed. After all, he started SIN with
the expectation he'd be dating HIV-positive men, yet
it seems the tables are turning. "Now I have to face
dealing with that," Levinson says. Such are the wages of
SIN.
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